Update on the baby
Posted on 2004-12-20 by Mike
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Name: Maxwell Evan Johnson

DOB: 12/20/04
Time: 1:38pm
Weight: 5 lbs 10.6 oz
Length: 17 3/4 "


In case you didn't know, Max has 2 birth defects. These have been know to Amanda and me for some time now. He has "Tetralogy of Fallot" and "Dandy Walker Malformation". You can google those and find LOTS of info on the gory details of these defects, but allow me to sum up OUR particular circumstances.

Tetralogy of Fallot:

Basically this is a heart defect that constricts the flow of oxygenated blood to the rest of the body. Since the blood isn't flowing properly, he has the possibility of turning blue. Another issue is a hole between the two lower chambers of the heart. This hole mixes the oxygenated and non-oxygenated blood. These problems CAN and WILL be fixed. The WHEN will be determined in the next few days when the ductus in his heart closes (this is normal for newborns). If his blood/oxygen levels fall below a certain level he'll need a temporary fix done to the heart and then the normal surgery done at a later time (4-6months old).

Dandy Walker Malformation:

This a when the cerebellum doesn't form properly(the cerebellum is in the back part of your brain). Usually a cyst will form blocking the normal drainage of the spinal fluid. This causes hydrocephalus (water on the brain) which adds pressure to the brain. This pressure from excess fluid and the the cyst WILL cause some amount of developmental problems. This problem's fix is considered a "return later" procedure. A neurosurgeon will insert "shunts" into his brain to aid in the drainage of the fluid. This will help with the pressure from the fluid but NOT from the cyst. The cyst can not be removed without causing more damage.

So like I said, this is a brief, generic, how-I-remember-it overview of Max and his needs currently. I am not a doctor. If you want more info on these medical issues look them up on a reputable medical website.

File Under: DailyMax Update , Surgery 

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